‘Well, some say life will beat you down
break your heart, steal your crown
So i’ve started out
for God knows where
I guess I’ll know
when I get there
And I’m learning to fly
But I ain’t got wings
Is the hardest thing’…
‘Learning to Fly’ by Tom Petty, popped into my head when I was encountered with my first ‘you’re lucky’…
Right at the very beginning of my MS journey. The most frightening time of my life. The first person who found out I was off work for three months, enduring numerous tests for a MS diagnosis said to me, ‘you’re lucky’ it isn’t cancer or diabetes’.
Am I lucky?
A year before I experienced my first MS symptoms, I watched my adorable friend lose her 18 month battle to secondary cancer. I have lost dear family members to cancer. I have family members and friends in my life living with diabetes.
Of course those wouldn’t be the only insensitive remarks I would encounter during my MS journey. I was also told by a (ahem) friend, ‘you’re lucky you have M, as otherwise you would be in some sort of home or facility’.
I had no comeback for either of these remarks. I was at a loss for words.
But I feel I’m now learning to fly? How can I be lucky?
I believed, no I knew, I was so much stronger than their words. I have reached ten years of living with MS without their negativity in my life – something I wouldn’t have managed to achieve if they were still present.
I am grateful for those I cherish and love in my life who have stuck by me, and with me. I am grateful to have M. I am grateful to have such supportive family and friends. The MS/Chronically Ill Community. The social media influencers. The advocates. The bloggers. The lovers of life showing up and giving it their all, despite their daily struggles.
I am still learning to fly!
I am still learning, still trying to figure it all out. Every day is different. I have learnt over the years my limitations, knowing when to stop, to recharge, but some days it is easier said then done.
But I keep trying, as the day will come when I will fly again. Flying high with the most strongest of wings I could ever imagine!.
So I thank you.
I am very lucky indeed.