I was meant to blog yesterday, but my good ‘ol pal fatigue turned up, so it was a day of nothing.
Seven years ago yesterday, I was hit with my first symptoms of MS (didn’t know it at the time). Numbness on the left hand side of my head and face for four days, then the numbness spread down my neck, shoulder to my elbow. To the doctors it is then! Waiting for the results of numerous blood tests and neck x-rays seemed to go on forever, but a week later the results came back…all normal. The headaches were still hammering in my head, and the fatigue was, well, you can imagine. The numbness has now spread to the whole of my left arm. So the left hand side of my head, face and whole arm is numb…such a bizarre feeling.
I have now been signed off work for three months. It was a tough time. Another trip back to my GP and he was on the phone to the local hospital, booking me in to see a Neurologist. A very, very, long story short. After an MRI scan showed lesions on my brain, a chat about the “possibility” of MS was discussed. Further blood tests, MRI scans, and of course, the lumbar puncture! It was the worse experience I have ever had to endure. I obviously needed more local anesthetic, as when the nurse proceeded to insert the huge needle into my spinal canal, well, lets just say, my choice of words weren’t pleasant, but under the circumstances… Second time lucky, the needle was in, but it didn’t stop the tears rolling down my cheeks. I hated every moment of it. It wiped me out for two weeks after. Nausea, throwing up, and I literally thought my head was going to fall off! I couldn’t sit up without the pounding in my head, well, not pound!
I never googled lumbar puncture, not until a few years later. Now the pounding in my head makes sense! Eurgh!
Six months later, the numbness disappeared. Just like that!. I still wasn’t given a definite diagnosis of MS. Just, “it may be a very mild form of MS”. So, I plodded along. I went back to work gradually for a couple of months, then back to full-time. By the middle of 2011, I applied for the “early redundancy package” from work. A package I was grateful to have the option of applying for, accepted, and at the right time! Roll on July 2012. I have not worked for 7 months, and feel great! Just a few fatigue days, but I don’t have to worry about work or be anywhere. And the house has never looked so clean! Then two weeks I recall before my 40th birthday, I was finally diagnosed with “mild MS”! HOORAY! At last! Two horrible years later, I have a diagnosis. I can now start to re-evaluate my life and work out what I can do to make this disease stay “mild”, and continue living the life I was living previously…but, life doesn’t always work out that way…
It’s a beautiful Sunday morning here. The hero is cooking, and the smells coming from the kitchen make my heart sing. We have the most wonderful array of birds munching outside on their bird table, and I am one happy individual!
I have stopped today to smell those roses…what more can I ask for. 🙂
Wishing you all a lovely Sunday.