It’s been four weeks since my last post, and it has definitely been an up and down roller-coaster ride! I was fatigued for four days of my ten days on leave, but so grateful I was on leave and didn’t have to phone into work every day. It was hot here also, so I guess a no- brainer!.
The hero had a great birthday, and I managed the fatigue (in the heat), to enable us to enjoy the day I had planned for him. I surprised him with VIP, all day tickets for Longleat Safari Park, and we spent 40 mins with the keeper of the Red Panda’s feeding a gorgeous couple of Red Panda’s!. The hero didn’t have a clue, and absolutely loved it! Then it was a fatigued few days, then back to work!
1st June was my appointment with my Neurologist and MS Nurse to discuss how I am getting on with Plegridy. It was a year in April since I started injections with Plegridy. This has been up and down also. The side effects still hit me for a couple of days (flu-like symptoms), but all in all, nothing really to complain about…and no, even after a year, the injecting doesn’t get any easier! He did give me an option of switching to Copaxone. Copaxone is again, self injections but doesn’t come with side effects! Yay! But I would need to inject three times a week, as opposed to once every two weeks. Boo. 😦 Even though Copaxone doesn’t come with side effects, I will experience tightness in the chest, and palpitations for about 10-15 mins after each injection. Injection site reactions will be the same as Plegridy though. So, I am still researching and weighing up my options. I understand Copaxone is a little “stronger” than Plegridy, but as I haven’t had any major relapses since I’ve been on Plegridy (My Neuro confirmed the Vertigo episode was not necessarily a relapse), I really don’t know whether to make the switch?…the injecting three times a week, with injection site redness is really putting me off though!
Next MRI scan will be in January 2018. It would have been two years since my last MRI, so I think I will wait and see if any (and hopefully none) activity has been happening in those two years…we always cross everything humanly possible that there isn’t anything new, don’t we!
From my appointment on the 1st June, I have been doing OK. We are just coming out of a five-day heat wave also, which to be honest, did get to me, but I coped. I am so happy it is getting cooler again though.
And that has basically been my last four weeks. Bit fatigued, then feeling good, then a bit of fatigue again!.
I still smile through it, and still try to make people laugh and smile with me – and for the last week or so, I have been stopping to have a smell of those roses, and it has been wonderful.
Keep smiling 🙂